Seeing a doctor or healthcare professional can be stressful. You’ll need to tell your primary doctor exactly how you feel and as clearly as possible to receive the most appropriate care. However, for people with disabilities, especially if they struggle with speech, expressing themselves can be challenging and frustrating. They may not be able to articulate their pain or symptoms clearly, which could lead to missed opportunities for timely treatment and increased risk of further complications.

In such scenarios, caregivers play a vital role in being the voice for patients who have disabilities, ensuring that the right support and treatment plan are provided for the patient. SPD’s registered nurse, Guo Rui Min, who works with adults and seniors with disabilities or disabling conditions at SPD@Toa Payoh, offers tips for caregivers on how they can help to facilitate communication between patients and their primary doctors.

Prioritising patient’s needs and wants

Patients who have disabilities, especially with multiple conditions, are usually seen by different specialists “Caregivers can help to keep a journal of the patient’s symptoms, behaviours, and any changes that you notice,” suggested Rui Min.

It is also important for caregivers to be aware of a patient’s preferences and needs, and to share this information with the medical team. With better understanding of the patient’s condition and overall well-being will enable them to prescribe more holistic and appropriate care to the patient.

Caregivers can also prepare a list of questions and concerns and raise them during the consultation sessions.

Building a Relationship with Healthcare Professionals

Building a strong and collaborative relationship with healthcare providers is essential. “Doctors are more likely to listen and respond positively if they see caregivers as partners in the patient’s care,” said Rui Min. She recommends being proactive in communicating with doctors, sharing observations and asking for their input on care strategies. Establishing mutual respect and trust can lead to better outcomes for the patient.

Leveraging Assistive Technology

There are various communication aids and tools available to help patients with disabilities express their needs. Rui Min highlights the use of communication boards, apps and other assistive technologies. “These tools can bridge the gap when verbal communication is not possible,” she explained.

For example, a communication board with pictures can help a non-verbal patient indicate pain or discomfort. Caregivers should work with speech therapists or occupational therapists to find the most effective tools for their specific situation.

Training and Resources

For caregivers looking to enhance their communication skills, Rui Min recommends speaking with their primary doctor for tips that would be most relevant and useful for the patient. “Instead of trying to search online for tips or strategies that might not work for the patient’s individual needs, it is best to go direct to the doctor and ask for their opinion on what can or cannot be done,” said Rui Min.

Staying informed about best practices and new communication tools can make a significant difference in the quality of care provided.